CLL support and caregivers
Support and Caregivers
Caring for a loved one can be rewarding but it can also bring with it, its own set of challenges and emotions. The person that you would usually rely on for emotional support may be that who has been diagnosed, and you feel you cannot go to them. As a carer it is important to know that you are not alone and that the feelings you have are shared by many others in a similar situation. Finding your own support network is just as important for you as for the person you are caring for. Speak with your doctor or cancer care practitioners for advice on local support groups to you.
Patient Support Groups
The European Leukaemia Network is a non-profit organisation dedicated to improving the care of people with leukaemia across Europe.
The Leukaemia Care online forum is a place where people can ask questions anonymously or join in discussions with other people in a similar situation.
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To support patients and their families, Janssen launched ‘Make Blood Cancer Visible’, a campaign asking people impacted by blood cancer to make themselves and their blood cancer more visible by sharing images or personal stories of their journey with blood cancer, thereby increasing the visibility of blood cancers throughout Europe.
For guidance on how you can best help and important information on how to take care of yourself, download the ‘Guidance for carers’ booklet.