My IBD Journey
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Helping people with IBD
Many people with inflammatory bowel disease (IBD) are able to lead happy and productive lives. However, it can be difficult to understand how to balance IBD with your daily life. Here, we offer advice on a range of issues that you may encounter as an individual living with IBD.
Find out about IBD
Inflammatory bowel disease, or IBD, usually refers to chronic (long-term or life-long) conditions such as Crohn’s disease (CD) or ulcerative colitis (UC).
Managing IBD
Being diagnosed with IBD can be an overwhelming and confusing time, but there are many simple things you can do to help manage your condition.
Hints & Tips
Practical advice for patients, as well as family and friends, including tips on how to live with IBD.
References
[1]
Cremers FP et al. Genes. 2018; 9(4):215.
[2]
Ziccardi L et al. Int J Mol Sci. 2019; 20(22):5722.
[3]
MedlinePlus Genetics. National Institutes of Health. What is a gene? 2021. Available at: https://medlineplus.gov/genetics/understanding/basics/gene. Last accessed: February 2024.
[4]
MedlinePlus Genetics. National Institutes of Health. What is DNA? 2021. Available at: https://medlineplus.gov/genetics/understanding/basics/dna. Last accessed: February 2024.
[5]
MedlinePlus Genetics. National Institutes of Health. What is a gene variant and how do variants occur? 2021. Available at: https://medlineplus.gov/genetics/understanding/mutationsanddisorders/genemutation. Last accessed: February 2024.
[6]
MedlinePlus Genetics. National Institutes of Health. Help me understand genetics: mutations and health. 2018. Available at: https://medlineplus.gov/genetics. Last accessed: February 2024.
[7]
Healthline. Eye. 2015. Available at: https://www.healthline.com/human-body-maps/eye#1. Last accessed: February 2024.
[8]
MedlinePlus. National Institutes of Health. Retinal disorders. 2021. Available at: https://medlineplus.gov/retinaldisorders.html. Last accessed: February 2024.
[9]
Narayan DS et al. Acta Ophthalmologica. 2016; 94(8):748–754.
[10]
Lamb TD. Eye (Lond). 2016; 30(2):179–185.
[11]
Lam, B.Let al. Orphanet J Rare Dis. 2021;16, 514.
[12]
Moore AT. Ophthalmology. 2017; 124(9):1254–1255.
[13]
Méjécase C et al. Ther Adv Ophthalmol. 2020; 12:1–128.
[14]
Tatour Y et al. Diagnostics (Basel). 2020;10(10):779.
[15]
Liu W, et al. Int J Mol Sci. 2022;23(9):4883.
[16]
National Institutes of Health. US National Library of Medicine. Leber congenital amaurosis. 2021;1-4. Available at: https://clinicaltrials.gov/ct2/show/NCT02781480. Last accessed: February 2024.
[17]
National Institutes of Health. US National Library of Medicine. Stargardt disease. 2020;1-13. Available at: https://clinicaltrials.gov/ct2/results?recrs=&cond=Stargardt+Disease&term=&cntry=&state=&city=&dist=. Last accessed: February 2024.
[18]
National Organization for Rare Disorders. Retinitis pigmentosa. Available at: https://rarediseases.org/rare-diseases/retinitis-pigmentosa#:~:text=Retinitis%20pigmentosa%20(RP)%20comprises%20a,the%20inside%20of%20the%20eyes. Last accessed: February 2024.
[19]
Wang DY et al. Clin Chim Acta. 2005; 351(1-2):5-16.
[20]
Chivers, M et al. ClinicoEconomics and outcomes research: CEOR. 2021; 13:565–572.
[21]
Martinez-Fernandez De La Camara C et al. Expert Opinion Orphan Drugs. 2018; 6(3):167-177.
[22]
Fuster-Garcia C, et al. Int J Mol Sci. 2021; 22(13):6723.
[23]
Piotter E, et al. Biomolecules. 2021;11(8):1179.
[24]
Huang D et al. Ophthalmic Genet. 2022; 43(1):1-26.
[25]
MedlinePlus. Stargardt macular degeneration. Available at: https://medlineplus.gov/genetics/condition/stargardt-macular-degeneration/#references. Last accessed: February 2024.
[26]
Tsang S, et al. Adv Exp Med Biol. 2018; 1085:53-60.
[27]
Michalakis Set al. Mol Diagn Ther. 2022; 26(1):51–59.
[28]
Huang CH, et al. Genes (Basel). 2021; 12(8):1261.
[29]
Kapetanovic JC, et al. Genes (Basel). 2019; 10(10):738.
[30]
Forsyth R & Gunay-Aygun M. Gene Reviews. 2003 (updated 2023). University of Washington, Seattle. Available at: https://www.ncbi.nlm.nih.gov/sites/books/NBK1363/. Last accessed: February 2024.
[31]
Forsythe E et al. Orphanet J Rar Dis. 2023; 18:181.
[32]
Forsythe E et al. Eur J Hum Genet. 2013; 21(1):8-13.
[33]
Lee KY et al. Genet Med. 2015; 17(4):245-252.