Inflammatory Bowel Disease (IBD)

Inflammatory Bowel Disease (IBD) and you

When someone is first diagnosed with Inflammatory Bowel Disease (IBD), it can often lead to feelings of anxiety and confusion, a sense of being overwhelmed, and questions around what the future will look like. It’s worth remembering that many people with IBD are able to lead happy and productive lives. Building knowledge can help you tackle the condition and deal with it every day. It’s the first step towards effective treatment.

The information on this website is intended to give you an overview of IBD and provide answers to some of the most commonly asked questions we hear from other people living with IBD. Remember, though, that your doctor should be the first person you talk to about more specific queries.

How you can use this website

Use the navigation panel above to jump to information that is most relevant for you. Alternatively, we have selected some of the most commonly searched for content below which you can click on via each icon.

Additional resources addressing some of the topics tackled in this website can also be found at the end of the relevant sections for you to download and view or keep.

This site is regularly updated with new resources; keep an eye out on the main page for new updates.

Key topics

About Inflammatory Bowel Disease (IBD)

The information on this page is intended to give you an overview of Inflammatory Bowel Disease (IBD) and provide answers to some of the most frequently asked questions we hear from people living with the condition.

Managing Inflammatory Bowel Disease (IBD)

Click here to learn practical tips and tricks for helping to manage and live with your condition and its symptoms.

Treatments

Although there is not currently a cure for Inflammatory Bowel Disease (IBD), treatments are improving all the time. Click here to learn about the different types of treatments that are available to you.

Carers

Caring for someone with Inflammatory Bowel Disease (IBD) can be complex and demanding. This section provides helpful advice and guidance for family and friends who may be caring for a loved one.

Janssen Initiatives

Janssen has been active in immunology for over 20 years and we have a range of support materials, tools, and services to help you better live with your condition.

My IBD Journey

My IBD Journey offers guidance on how to plan and manage the range of symptoms you may encounter as an individual living with Inflammatory Bowel Disease (IBD), allowing you to live your life to the fullest.

Find out more

References

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NHS. Amyloidosis. Accessed May 26, 2022.

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McCausland KL, White MK, Guthrie SD, et al. Light chain (AL) amyloidosis: the journey to diagnosis. The Patient-Patient-Centered Outcomes Research. 2018;11(2):207-16.

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Cancer.Net. Amyloidosis: Symptoms and Signs. Accessed May 26, 2022.

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Mayo Clinic. Amyloidosis overview: symptoms and causes. Accessed May 26, 2022.

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National Organization for Rare Disorders. Amyloidosis. Accessed May 26, 2022.

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D'Errico S, Mazzanti A, Baldari B, Maiese A, Frati P, Fineschi V. Sudden death in lambda light chain AL cardiac amyloidosis: a review of literature and update for clinicians and pathologists. Int J Clin Exp Pathol. 2020 Jul 1;13(7):1474-1482. PMID: 32782665; PMCID: PMC7414507.

[7]

Mayo Clinic. Amyloidosis diagnosis and treatment. Accessed August 20, 2020.

[8]

Lousada I, Comenzo RL, Landau H, et al. Light chain amyloidosis: patient experience survey from the Amyloidosis Research Consortium. Advances in Therapy. 2015;32(10):920-928.

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Merlini G, Dispenzieri A, Sanchorawala V, et al. Systematic immunglobulin light chain amyloidosis. Nature Review Disease Primers. 2018;4(1):38.

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Hasib Sidiqi M, Gertz MA. Immunoglobulin light chain amyloidosis diagnosis and treatment algorithm 2021. Blood cancer journal. 2021;11(5):1-9.