Inflammatory Bowel Disease (IBD)

Patient advocacy groups This website is developed exclusively by Janssen Pharmaceutica NV. Please note that the patient advocacy groups listed below are an additional and independent source of information you might find useful. These groups were not involved with the creation of this website and do not endorse its content in any way.

IBD Support Groups

It takes Guts

ItTakesGuts wants everyone to talk about and understand Crohn's and Colitis. In schools, homes, cafes and offices, the #ItTakesGuts movement aims to help people find the right words and tools to start the conversations that really matter.

EFCCA

The European Federation of Crohn's & Ulcerative Colitis Associations (EFCCA) represents 46 national Crohn’s and Ulcerative Colitis (IBD) patient associations. We are an organization of people united in our commitment to improve the life of over 10 million people living with IBD worldwide (3.4 million in Europe alone) and to give them a louder voice and more visibility.

Relationships

Crohn's & Colitis UK. Sexual relationships and IBD. Available at: http://s3-eu-west-1.amazonaws.com/files.crohnsandcolitis.org.uk/Publications/sexual-relationships-and-IBD.pdf [Last accessed May 20, 2019]
Resilient Families. Types of intimacy. Available at: https://resilientfamilies.com/tag/types-of-intimacy/. [Last accessed May 20, 2019]

My IBD Journey

My IBD Journey offers guidance on how to plan and manage the range of symptoms you may encounter as an individual living with Inflammatory Bowel Disease (IBD), allowing you to live your life to the fullest.

Find out more

References

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Cancer.Net. Amyloidosis: Symptoms and Signs. Accessed May 26, 2022.

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Mayo Clinic. Amyloidosis overview: symptoms and causes. Accessed May 26, 2022.

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National Organization for Rare Disorders. Amyloidosis. Accessed May 26, 2022.

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Mayo Clinic. Amyloidosis diagnosis and treatment. Accessed August 20, 2020.

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Lousada I, Comenzo RL, Landau H, et al. Light chain amyloidosis: patient experience survey from the Amyloidosis Research Consortium. Advances in Therapy. 2015;32(10):920-928.

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Merlini G, Dispenzieri A, Sanchorawala V, et al. Systematic immunglobulin light chain amyloidosis. Nature Review Disease Primers. 2018;4(1):38.

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Hasib Sidiqi M, Gertz MA. Immunoglobulin light chain amyloidosis diagnosis and treatment algorithm 2021. Blood cancer journal. 2021;11(5):1-9.