Myasthenia Gravis (MG)
Myasthenia Gravis and you
Welcome to the MG area of the JanssenWithMe platform, dedicated to helping people understand more about myasthenia gravis (MG).
Receiving a diagnosis of MG can be overwhelming, since the disease can affect not only your physical abilities but also your overall quality of life. MG is characterised by weakness in the voluntary muscles, which are muscles consciously controlled by the brain. Because these muscles are attached to the skeleton throughout the body and control body movement, people living with MG can find daily physical activities challenging. The symptoms of MG are often unpredictable and may fluctuate, which requires adjustments in everyday activities to accommodate the symptoms when living with the disease.
By enhancing understanding of MG, its symptoms and the treatment options available, people living with MG, as well as their carers and loved ones, can play a more active role in care, should they wish. Knowledge and understanding of MG can empower people living with the condition and their caregivers to make informed decisions during medical consultations and to tailor care plans according to specific needs.
Here, we aim to provide trusted and reliable information to help further understanding about the journey of living with MG. More updates are planned for this website, so stay tuned over the coming months. For specific medical advice, always consult your healthcare team as your first point of contact.
Patient Perspective
“My symptoms with myasthenia [MG] can vary from hour to hour, day to day, week to week, month to month. There's no knowing one day how I'm going to feel later on in the same day. I might have reasonably well-controlled symptoms in the morning, but by the evening I may not be able to get up and down the stairs. So, every day is a little bit of its own adventure with symptoms of myasthenia, and there's really no predictability.” – MG Patient, UK
Key topics
